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FAQs
Harvey Price, the eldest son of celebrity Katie Price, is probably the most famous person who suffers from Prader-Willi Syndrome (PWS), a condition that occurs randomly in about 1 in 22,000 births.
People with Prader-Willi syndrome do not always become obese if their diet and food issues are controlled. They will not be able to control their food intake themselves and it must be managed for them. They also have a slow metabolism, and require less food and fewer calories than other people.
Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.
Children with Prader-Willi syndrome are delayed in all aspects of development, reaching developmental milestones – such as sitting, crawling and walking – later than other children. The average IQ of a child with Prader-Willi syndrome is around 70, but the degree of intellectual disability will differ for each child.
If their diet is well controlled and they do not become overweight, adults can have a good quality of life and probably a normal life expectancy. Many adults with Prader-Willi syndrome take part in activities such as voluntary or part-time work but it's unlikely they'll be able to live fully independent lives.